My story
begins with a routine mammogram on July 6, 1999. I
was 48 years old and thought I was in perfect health. I
was always called back to have more films taken, due to a
problem with small cysts. This year was the same as
before. I went back to have more films done, but this
time the radiologist came in to talk with me. She told
me there was something showing that she did not like the looks
of and she felt that I should see my primary care physician.
The radiologist even tried to call my doctor, but it was lunch
time and he wasn't in the office.
I was
so upset. I worked 20 miles away from my hometown, and I
really didn't know if I had the power of concentration to
drive myself home. My daughter's future mother-in-law
worked in the radiology clinic. She sat with me, offered
to call my husband or daughter so they could come for me and
drive me home, but I did not want to have either of them learn
that I might have a serious health problem in that manner.
With her help I was able to pull myself together. I
drove back to my workplace, called my doctor's office and was
told he did not have any appointments open that day. I'm
usually a very passive person, but that day I asserted myself
and insisted they work me in. I drove myself to the
office, after I had a good cry. My doctor checked me and
assured me he couldn't feel anything, but he agreed with the
radiologist that I should see a surgeon.
My
appointment with the surgeon was pretty much a repeat of my
other doctor visit. Dr. Tate (my surgeon) couldn't feel
anything either, so a needle biopsy was scheduled for the last
week of July. Those were the two most miserable weeks of
my life. I couldn't eat, sleep or concentrate on
anything. I knew in my heart that I would be diagnosed
with cancer, I just didn't know how bad it would be. My
needle biopsy did show cancer cells, so surgery was suggested.
My surgeon thought that a lumpectomy would be all that was
necessary. He even assured me that I would not need
chemo treatments. This was a life altering situation for
me, so I requested that he set up an appointment with an
oncologist.
My first
visit to the oncologist was mind boggling. I had so much
information given to me, but the main thing that stuck in my
mind was I would have to have 4 chemo treatments and at
least 25 radiation treatments, and I would lose my hair.
But before any of this could be started I had to have all
the other scans and ultrasounds to see if I had any
cancer showing in my bones, brain, lungs or any other
vital organs. Thanks be to God all these tests were
negative.
My
oncologist informed me that there was no hurry to do the
surgery. I could take a cruise or an extended vacation
if I wanted, but I felt that I needed to confront this head on
and get on with the surgery and treatment plan. My chemo
-- Adriamycin & Cytoxan -- would be taken every three
weeks. I desperately wanted to be finished before
Christmas. I did get them all in before Christmas, then
started my radiation on January 2, 2000.
My
surgery was scheduled for August 31st. Thirteen lymph
nodes were removed from my right arm and all were negative.
My tumor was estrogen receptive positive (I had been on
hormone replacement therapy for 4 years) so that meant that I
would be on tamoxifin for five years. I came through the
surgery fine, drainage tubes were bummers, but you do what you
have to do. I also have terrible hot flashes, but I take
Bellamine which does help some. I also took some
extensive physical therapy to help get my arm back in shape,
since I am right-handed.
I
started my chemo the first of October, this treatment was my
worst. The anti-nausea medication caused a migraine, so
I was so sick all night long. The next morning I was
admitted to the hospital because I had gotten so dehydrated.
By the end of October, I could sit on my front porch and
watch my hair blow away in the breeze. My great nephew
would have a birthday on October 30th and I did want to have
my hair for that family gathering. I had told my
husband that I wanted him to shave my head on Halloween.
He had a really hard time doing that for me, but I convinced
him that shaving my head was about the only thing in my
life, at that time, that I had control over.
My
husband was so supportive, he offered to shave his head, so
we'd be a matching pair. Of course, I wouldn't ask that
of anyone. So after Halloween, my husband had a
totally bald wife. I had a beautiful wig that I had
ordered long before my treatments even began, but I hated it.
It was so HOT... I only wore it to church. My
daughter is a Mickey Mouse collector and she had
lots of Mickey hats, so I usually wore a hat when I went
out and wore a bandana around our home. I really
had to be careful because if someone came to the door, I
didn't want to scare them away by opening the door
without something covering my head. Without eyelashes
and brows, you really are a little frightening.
The only good thing
about chemo is that you don't have to shave your legs...
The cancer center where I took my treatments also furnished me
with sleep caps made by volunteers. You don't know how
cold your body can get when you don't have any hair to hold in
your body heat.
I think
a cancer diagnosis is really hard on the patient's family.
All my family were so protective of me.
My
husband, daughter, mom, dad and sister were so good to me.
I never had to worry about someone to take me for my
treatments, if my husband was scheduled to work, my mom and
dad were always there to drive me the 20 miles to the Gibbs
Cancer Center. My husband took pictures of me without
hair at Christmas time and even now he will cry if we look
through those pictures. My mom cooked so many meals for
us, even though I couldn't eat much, she did keep my husband
fed. I had offers to clean our home, buy our groceries
and all the other things it takes to run a home. My
employer was wonderful, they let me set up my office at home,
so that I could work when I felt well enough. Many times
I couldn't sleep, so I'd work half the night and sleep during
the day.
I now
participate in Relay for Life in Cherokee County, South
Carolina and the Susan Komen Walk. I have a family team
and we do most of our fundraising by selling food. I
have donut and hot dog sales all through the year. This
year our team raised $3,500 which helped our county
surpass it goal by $6,000. I'm passionate about
Relay for Life because the research to develop tamoxifin was
funded by the American Cancer Society. Many breast
cancer survivors might not be here today if this medicine
had not been developed.
I
hope I will live to see a cure for this dreaded disease.
I would never want anyone to have to go through what we've all
been through. I thank God each and every day for his
many blessings and for letting me see another beautiful
sunrise or sunset, or to even be alive to look upon the faces
of my loved ones. We all worry about a reoccurrence, but
after a major health crisis like ours, I think we all
appreciate what we have and revel in the second chance we have
been given. I also believe we are stronger women
after going through all the things we have had to do to save
our lives.
Please
pray for me and all other survivors of this dreaded disease. I
hope my story can help to save one life by encouraging
someone to go for their yearly mammogram or making an
appointment with their doctor to check out a lump.
Medicare
is not covering the cost of routine mammograms for senior
ladies. Please write your congressman/woman to help get
this coverage reinstated for senior women through Medicare...
Faye
Gaffney,
SC